‘Been back home just over a week now and I’m walking with no wheelchair. I go out with my wife every other day and have been doing 2 mile walks with one walking stick the pain has gone down dramatically.
I still take my pills but I can forget about them now and the bliss of being forgetful is so nice. The pain just can’t win it still hasn’t come back in my higher back the treatment was successful. I’m so damn happy about this, my wife says it’s like having the old me back before I got fibro. I’m chatty, happy and smiling with joy which is beyond amazement.
I could type about this all day about how happy I am and when I spoke to the staff on the phone I told them I would be happy with just being able to walk up the street with my wife actually been able to hold her hand but I got so much more.
I feel better every day that goes by and for crying out loud, 2 miles and more of walking! I am beyond amazement, gratefulness and cheerier than ever. And for once in 3 years, my wife can actually rest, instead of having to look after me. I cook my own dinners and hers as well, I’m always up and about and I hate sitting in chairs with wheels on now just because of that electric wheelchair that’s gaining dust in the garage, I no longer use it at all.
It’s great and finally I can give my wife a big hug and she can hug me back without any pain making me scream, it is lovely and not one pain attack since I started the treatment or I might of had one and not felt it that’s how good it is. Got my life back, I can as well walk up stairs, so far I done 9 stairs with no pain, stairs are no longer my worst enemy! Many thanks now I’m going to walk to the store and back it’s great!!!! Your treatment is beyond brilliant’. Jason
Further Update: ‘It’s been 3 weeks now since I had the treatment for my Fibromyalgia and I am in shock on how well my body is doing. All my old muscles are growing back I am getting stronger and better every day that goes by. I can walk further and faster, the furthest I have walked is 4 miles and I have started doing it every other day, it feels brilliant.
I am even faster than my wife now she struggles to keep up. I do wait for her off course but to have my old speed back is beyond any words of joy I can think of. It is so good to feel like my old self, I still use one and only one walking stick but have now done 20 footsteps on my own with no stick. It’s so good to walk round the living room without it and can even do stairs with barely any pain. The most I have done are 14 steps of stairs now and before it was only 9 steps.
5 weeks ago before I had this treatment, I would of never thought of even the smallest of all thoughts that I would be like this again and yet here I am moving round on my own two feet walking with my wife down the road to town holding hands and getting a proper cuddle instead of a nervous hug because she was to scared that she will hurt me and me stuck in that wheelchair not being able to move on my own 2 feet.
But now those days are no more, those days are gone. I have finally got the silver lining that I have been hoping for from all those years with Fibromyalgia. I feel 90% better and it’s still rising, life is now greater than I would of ever imagined’. Jason
Start: ‘My name is Jason, when I first got fibromyalgia I was 23 and it hit me like a ton of bricks.
Before fibro, I was as active and fit as can be, I ran 2 miles every morning to the train station, went to work and I was training to become a team manager at Boots store. I did all the heavy lifting for my female co-workers, a lot of running about for them but I enjoyed it. My life was finally going the way I wanted.
I’d just got with my Mrs by then so I was in a new relationship, everything was going great but then my life was turned upside down. I just turned around on my work chair and my back cracked. I’d been having back pain since I was 13 so I thought it was nothing, just a normal backache but a bit more painful than the others I had.
Came home after work, the pain was getting a bit worse than normal but I ignored it and when I woke up in the morning I was in a lot of pain running through my back. But I had a job to do so I got a mate of mine to drop me off at work. I couldn’t walk fast due to the pain and was sent home from work and from then everything went downhill.
I lost my ability to walk just after a week, the pain was too much, I couldn’t do anything. I was admitted to hospital after 3 months and they sent me home after 4 days saying they didn’t know what it was and there was nothing they could do for me apart from sending me to the pain department. But the chronic pain that I felt all the time just wouldn’t ease off it was getting worse every day.
I became a burden to my family. I know now that I wasn’t but just to lose everything in such a short amount of time was insane. I was grumpy, angry, I hated the world for what had happened to me. By the third month I was on 50mg of pain killer per hour the liquid version. I was on that for about a year but I had a good doctor who saw the real face of the pain and didn’t fob it off like most would. He just wanted to help and to be honest I can’t remember much from that year.
I can only remember a very small bit for that year but have all the paper work plus what my family told me and my wife told me. I was terrible to live with but they knew it was the pain and meds that was making like this, I have some memories and the way I treated them was beyond disgusting.
I felt like just useless, I actually thought death would have been my only way out and that thought did not leave me for a long time. I lost my job after a year of been on sick leave and that hurt like hell. I became this grumpy, insulting, nasty, vicious person that no one could have a conversation with or be round without me telling them how much I hated them, life or everything. I lost nearly all my friends apart from a very, very small handful but its times like this when you find out who your friends really are. After about a year and 3 months I was finally diagnosed with fibromyalgia from a private doctor.
The NHS wiped their hands with me, they tried barely anything to help me in the first year and 3 months but once I was finally diagnosed by a doctor that actually knew something, I came off the pain killer and was put on a cocktail of other pills but luckily came off the pain killer immediately. I hated what it was doing to me so much and was lucky I didn’t end up with an addiction that it can give you.
Finally started getting somewhere, I had a lot of treatments for fibro and a lot didn’t work at all, the only one that helped was hydrotherapy and I could only do that for 6 sessions but that was about 6 months after I was diagnosed. The NHS once again wiped their hands with me and told me they couldn’t help me anymore, which is ironic because they barely helped me at all.
I also tried the chiropractor’s, physiotherapy, Chinese medicine, body/sprit healers that use the energy coming from the body to heal the sprit but none of it worked. There were a lot more but I’ve forgotten what they’re called that’s thanks to the fibro fog, so I lost hope for any treatments and that was that. My life was going to be me in a chair not even able to lift a bottle off milk without a lot of pain flying through my back.
If I and my wife went out anywhere, if there was just one step then that was it, I would have to stay outside stuck in my electric wheel chair. Steps became my worst enemy, couldn’t even make 3 steps because it would set off a pain attack when it felt like knives where being thrust into my back constantly. It was 24/7 torture, I could not even get into cars as the bumps from the road and the vibration would just shut me down completely. The pain was too much and I felt like my brain went to mush, so I avoided going into any cars.
After 2 years the pain attacks became more regular. I was always in major chronic pain but the pain attacks hurt like hell, I was screaming for however long they lasted and I mean constantly screaming till the pain finally calmed down and took between 4 to 6 hours.
They started to become more regular and now happened weeks apart instead of one a month, it was just getting worst but when they calmed down I was exhausted, I couldn’t get sentences out and could barely think I was basically on auto pilot. I had no alternative solution to the pain and you couldn’t even touch me without me screaming.
My wife had to do everything for me, she dressed me, washed me, made my dinner and clean all on her own. I had literally become useless the only thing I could do was drive my electric wheel chair and that was it. Constant pain no matter what, lost everything and became this big bunch of useless nothingness in a chair.
This treatment was my last hope I mean it I had nothing left to lose my life was hell. I honestly did not see this was going to help me as much as it has helped Jabina. I read Jabina’s story and I thought it was worth a shot what did I have to lose, so I went for it and was up in Manchester for a total of 2 weeks and after 8 treatments my results are below:
After the first session I felt a lot more relaxed wasn’t having any muscle spasms which was a shock to me because when I came in I was having a mini pain attack but while having the treatment they stopped so I was very surprised from just one session the effects where incredible. That night I got in bed a lot easier and took my jacket off in a lot less pain which again was a massive surprise, it normally hurt like hell but this time not as much as a 6 on the pain scale.
Before 2nd treatment
Came in relaxed, still and actually had a decent night sleep which was a shock. I had not had a decent night sleep in years and woke up in less pain than normal even got my own t-shirt on my own. Now that felt good, being able to actually do something on my own again and could raise my arms a little bit higher than before the treatment started.
After 2nd treatment
Felt more relaxed again and just a lot more like my old self, a bit happier. The even better part was, I got a taxi back to the hotel and the bumps in the road I didn’t even notice them, me not notice bumps! There was no sharp pain in my back like normally there would have been. That night I found that the pain was out of my shoulders and I could move my arms much higher than before the second treatment and that was just beyond amazing.
No pain in my shoulders they were well, I couldn’t believe it, I could have never saw that happening in my life time and to more of my amazement I managed to do nine steps on my own without my walking stick. I know that’s sounds odd, why would a guy who was mainly wheelchair bound take such a risk? I only found out that I could do it when I tripped over and didn’t use my stick to balance me like I normally would so I thought, you know what, sod it, what have I got to lose? I’m used to pain so falling over wouldn’t be much of a difference, got to five steps with no problem then the last 4 started to hurt. It did take me 2 hours to recover that night but it was so worth it, I hadn’t done that since my fibro started. I was so happy and the even better part is, that it only took two hours to recover only 2 hours, that was beyond amazing, it would have normally taken days.
Before 3rd treatment
The morning after, I got up very quickly and shocked my wife she hasn’t seen me do that for a long time. Even had a lovely warm shower on my own, I actually felt like an adult, not like an infant that didn’t know how to wash, got my own cloths on easy not just my t-shirt my actual cloths. I could dress myself I was so damn happy.
After 3rd treatment
So had the treatment again and for once I stayed awake through it, I felt really good which was nice for once. Went to Oldham town centre and wasn’t having any muscle spasms. I was in my wheelchair and could barely feel any bumps or vibration from the chair. Afterwards went back to hotel and the taxi drive back didn’t affect me one bit, the bumps and vibration didn’t hurt at all. I wasn’t really sure if I was in a dream because how I felt was brilliant.
Also I had my back against a wooden chair and no major pain like it would have normally have been. I didn’t even notice for about an hour afterwards that I had my back touching something and for the first time with barely any pain. I could also move my legs easier, bent them twice before it started hurting but that’s still an improvement and you could more than gladly touch my shoulders. I mean, actually put your hand on my shoulders and I wouldn’t scream in pain. Last thing after the third treatment, I could walk outside of the hotel without my wheelchair, instead I used 2 walking sticks one for my weight the other for security of falling over and that was just great, to be outside in fresh air not sitting down.
Before 4th treatment
Woke up and had some painful lower back pain but nothing in the top and automatically did some twists of the back and the pain calmed down. It was odd the only other way I could calm the pain down was to have a hot shower so it was nice to actually twist and turn. Then later on I used both my sticks and walked to breakfast, it was very slow but it was so worth it and sat on a normal chair. I mean a chair that was not my electric chair, it was so nice to feel a bit more normal sitting next to my wife.
After the 4th treatment
After the 4th treatment I was going to have a three day break to see if all these improvements were maintained and to see if my fibro hit back and ruined the improvements? That wouldn’t be much of a surprise to me, it’s beaten everything else, so I was expecting it but in those three days I didn’t change and my improvements remained.
I felt really good and now for once in my life, for the first time in 3 years, I was able to walk next to my wife. She sat in my chair while I held onto the handle and my walking stick. I actually did about 200 steps and yes, I was counting, I was in shock but ok. I was exhausted afterwards but it was lovely, no beyond lovely, I was getting my ability to walk back. Like I said before, I walked to breakfasts and forgot to say I also started walking to dinners at the restaurant in the hotel. I felt really proud to be up and moving again, that had to be by far at the time, the best three days in the last 3 years of my life.
5th treatment to the 8th
The next few treatments were great, my legs started to hurt like hell and Andy told me it was because my muscles were growing and what I was feeling were the aches and pains of muscle growth that a person would get from the gym if they did too much.
So yes, I did a bit too much but I would not let this pain beat me, I would still walk to dinner and back same as breakfast and the pain did scare me for a bit. I thought it was coming back but that was before I talked to Andy and he was right. I hadn’t been out of my wheelchair for years and my muscles where not used to everything I did but it was so worth the pain by miles.
The next few treatments the only pain I was having was leg pain but I could touch my back from the middle to the top of my back with no pain. I was so happy and to still be happy was a nice change. I hated being so miserable all the time, after the last treatment I felt great and it was time to go back to Essex ….. yippee. I guess has happy as you can be to go back there and the results were great. No major pain on the journey back, not even minor pain and that was a lot of trains and taxies so everything was going great’*. Jason
When Jason started his Fibro treatment he was in an electric wheelchair, after treatment he was walking 2 to 4 miles a day.